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Barrow clothes dusted

Krzysio loves to go "on spacelek" and "pain" (the court). It is even able to sit politely while feeding him PEG, when holding a hat - the announcement of pleasure.

On this "tangled" and it breaks up the grass, which I shared with, it draws lines on the sand with a stick and of course he runs and runs in the least appropriate times.

but I really missed something in these our spacerkach. There were no toys. Plushies be a pity, a lost, blocks, cars destroy one two ... Well, as Christopher Robin has included a new, a street toy - Wheelbarrow.

joy of the possession in the attached picture:

PS. On occasion you will see the continued laying of the neck in the position odgięciowej - The new team Sandifera (here, just not enough, because it was before eating)

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Barry is growing and I hate every moment of the attic clothes after Christopher Robin.
When I look at this, I see them still in the original sum sumarum ... not so long ago, they "walked". It is amazing that Barry ended the day before three months, and her older brother dressed in such clothes as he had all year ... My eternal
crumb.
For comparison, a clown - to 3-y month Kate and the same on a 12-month Krzyśku:

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Krzysiowe painting

And that was not so sad on my blog, praise Krzysiowym the drawing. The discovery of markers quite recent and utterly absorbing painting student. Is an admirer of dots and dashes, as well acquainted with longer szlaczkami. Recent work abounds in them:)

Christopher Robin said that this is the house ....

Consider, therefore:

Krysia favorite color

Christopher Robin tries to close the felt-tip pen. The first time failed, but on the other hand failed to better.

's ready to work.

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Deterioration

were followed by bad days at Mr. Christopher ... Change of medicine - from the Helicid gaspridu resulted in the ongoing vomiting and crying from the pain of the esophagus.

In CZD told me that gasprid not really know if it works, and not needed since at his own request stuffed young. But Helicid is better, because the decrease inflammation of the esophagus. But as you can see, we do not miserably this exam.

Helicid reduces the secretion of gastric juices, making the esophagus is less teased, but take longer to digest food. However gasprid works to accelerate the peristalsis of intestines, the stomach is emptied more quickly, although the acidity of juice remains unchanged, and irritate the esophagus when withdrawing the contents of food.

I think the only sensible way with us, on the one hand the food is not in default, on the other juices are not so much uszkadzały esophageal administration of both drugs at once ... I hope this helps! By July, after all, we must persevere in the medications just ...

Preparation H Measurement

awaits us next operation - the team Sandifera

Yesterday we were at the Center for Child Health clinic gastrological.

Chris in April 2009 had anti-reflux surgery and nutritional gastrostomy chosen. Since then, no longer throwing up what he got to the tummy, but conquering, retching were. They are strong and tiring.
Another symptom of continuing problems and reflexes, is the position of neck flexion (Sandifera syndrome), which is used to reduce tension amended inflamed esophagus. This is due to very large lesions of the esophagus (ulcer, hernia) as a result of an ongoing irritation of the stomach juices. This can lead to cancerous changes. Krysia
U looks so that walking suddenly bends his head back and slightly to the right, so hard if he wanted to look at the ceiling. With this attitude more than once nearly lost his balance. Sometimes it happens very often 10 - 15 times per day, plus another 5 - 10 attacks emetics (without vomiting).

gastrological The clinic saved us at gastroscopy. CrossFit, because of its numerous problems and a thick file of it will have to be done in the wounds of hospitalization in the ward gastrologicznym. The term we are at the beginning of July. After the results of the tests the doctors determine the probable date of reoperation reflux in Christopher Robin.

And so ended a moment of relative silence ...

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Food Krysia few words about gastrostomy

was a time when I was looking for a gastrostomy nt different types depending on what pleasure he had to wear CrossFit. There is little such information. I have been helpful blogs like this one. So I decided to post a few words about Krzysiowych PEGach. Maybe someone need?

first PEGI what Christopher Robin wore a catheter flocare. It is a tube inserted into gastric fistula. After placing it on the site is pumped to the balloon, which protects against falling, and from the skin it zabespiecza silicon plate (so the tube does not enter the inside).

flocare advantage is the ease of care. You can always pick up a plate and clean the wound around. The downside is that the tube does not splits off, the children are busy as my son, this space is still working. This is true in respect to the position inside - PEG falls slightly, which can cause gastric content pouring in the abdomen, and this is known is not preferred because stomach juices are quite "virulent." The second movement, of which I speak is to work on some holes. A child walking, lying down, turning and rubbing irritates the protruding tube, which widens the channel. Unfortunately, it did at our place and in one month with the number 14 went to 16 and they wanted us to change it to 18 but it has not agreed and tried to save the fistula (the wider the circumference of the tube the greater the burden on the stomach).

flocare catheter looks like this:

Unfortunately, once the PEG Krzysiu escaped destroying the abdominal wall. Then we established a temporary Foley catheter. But we wore it for a long time, and exchanged for him when the hospital lacked the size of our PEGA flocare. Both look the same catheters. The difference lies in the fact that Foley is not plate, to support on gastrostomy on the belly. It was the worst period of PEGI. Christopher Robin has not yet walk, or sitting (up to 1.5 years) so like there was no problem with mobility, but maintain the catheter would not fell - is an art. Cudowaliśmy what they could. It was a way to clip lingerie, was the bandages ... but I did not give a sensational effect on wystawaniu above the surface of the abdomen did not mention.

Foley is such a thing:

last, our favorite is the low profile gastrostomy PEGI nutritious, sometimes called mushroom. When first inserting the measure requires the channel to adjust the height. Its advantage is the removable tube, so that PEG does not hinder the freedom of movement. Washed channel less freely than the Foley catheter flocare or because you can not pick up a mushroom. However, you can rotate AROUND cap, and so reach the needed space.

PEG's low profile:

set him

Pictured:

At the end of the show yet, "bowl" with śniadankiem Christopher Robin. Second breakfast, lunch, afternoon tea and dinner, look very similar:)

Meanwhile, in the same way, gets a drink.

hot

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Picnic in the lens

with Ms. Zofia Mrzewińską

; The perpetrators of all this confusion ... or at least some of them:)

we were little:)

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Appeal - a request for the dissemination of alarming symptoms

I request to all sympathetic souls who read this blog. Since
Krzysiowa therapy, rehabilitation and treatment are very costly, we can not alone ensure that they are at the right time.
We want our son's health, and therefore turn to you dear readers, for help and if possible dissemination of these leaflets.

We have opened an account at the Foundation's "Help on Time." Settlement of the foundation shall be based on invoices, so that the benefactor can be confident that their donation will be fully exploited for Krzysia.Oto our flyer (you can print and in public places poroznosić):

https: / / lh6 .googleusercontent.com/_lmirGGvyMms/Tcg7yi8f1TI/AAAAAAAAASU/LHugSl1xIHI/s640/ulotka.jpg
http://www.freeimagehosting.net/uploads/9ba08e7ac3.jpg

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Soon Christopher Robin goes again to the psychological diagnosis, and no waiting in line for the diagnosis of autism adjudicating committee. So I decided to write down all the psychic symptoms, which in any way seem to me to deviate from the norm.

· Bookmark Krysia is fun to walk around the room. Going looks at his hands, which moves in a weird emotional way, or somewhere on the floor. Always is accompanied by continued talking to himself. Typically, these are conglomerates of syllables without any meaning, however, spoken with the intonation the first syllable of this patchwork, with great emotional, as if Christopher Robin, has it something very important. It also happens that his speech has a meaning, experiencing what you experienced earlier that day. Another form of the game is to walk in a circle and singing at the mouth. Here, too, combines incoherently syllables, humming loudly, with pokrzykiwaniami and loudly stamping her foot.

· CrossFit has some love. He is fascinated by the light (that is, from a tiny toddler) loves to look at, manipulate. Hypnotize him both a light bulb, in the form of light in toys, everyday objects, and it's natural sunlight. Further, it attracts what is in the shape of wheels. He can play for hours in a car watching as the wheels are spinning, he likes to rotate, or the triggering of this move objects, such as Little Bittern. When you take a thing to hand typically fall at various intervals three statements (and sometimes not make any sense, does not belong to the item). Everything has to play - not play; light - not light, turn around - do not shoot.

· loves to spend the same noise. Stamping, shouting, screaming, hitting objects feels best.

™ has a mania szurania objects - a chair in the kitchen, a box of toy, an empty carton. The louder the better.

· However, noise from the surroundings, causing paralysis. Huge sound mixer arouses anxiety, crying sister, the sound of lawn on the property neighbor ...

· same is true when Christopher Robin is in a larger group of children. When nothing happens, plays by himself, but let the baby cry thou hast, letter dated, immediately raises a panic at Christopher Robin. It begins spasmodically shaking, crying shed bitter tears and hugging and needs immediate separation from the stimulus.

· CrossFit he also developed a method for coping with an excess of stimuli. It involves lying down on your back or sitting in a chair with back support and a fairly fast shooting his head left and right with your eyes open. Activities that usually accompanies purr. This is done often routinely. In the same way it always puts to sleep.

· When the incentives are not enough, he wants to immediately lie down and sleep, and he shall lay a half-day can przeleżeć shaking his head as above. You can not then pull it from so doing. I do not want to play, run, absolutely nothing it is no longer interested.

· CrossFit as a mantra, repeated his favorite phrase, "Do not be afraid", facing each other. He learned it from me, when I repeated to him, would not be afraid of everything. I think that this phrase is repeated about fifty times a day. He does so too with what is currently the most afraid. So now is the phrase "will not wash," because it gives rise to panic when his evening bath. He can wake up in the morning with that view, at the mouth.

™ has fits of uncontrolled rage. It's raining then the ground, screaming, her hands trying to snatch a gastrostomy from the abdomen. Do not come to him the words.

at times when he says to him something of a seemingly pleasant, such as "want to play?" CrossFit responds aggressively. Answers "no", get angry, screaming, bends, pulls out a gastrostomy.

· often during the day, "howling" with anger, just like that, without any objective reason, without waiting for cośkolwiek

· Spoken to him words often come to him, emptying the (then repeats the word.)

· A similar thing has happened also in play. For example, if some time looking for a cat in the picture does not get to him, the change command, for example, find the dog.

· It is at the stage of fun hopping around the room blocks, beans in the kitchen ... I believe He can build from a few blocks, but it brings him more joy.

• Do not understand the meaning of the question "where is the teddy bear?" And respond appropriately to "show the teddy bear."

· From birth not slept a single night. At least several times during sleep wakes up with a piercing cry, it's hard to calm him down. Dreaming nightmares he experiences regardless of the number of the previous day.

· Will watch a hundred times the same story, than a new one.

· It goes into a great rage when something he can not, for example, sent his car to tip over. Then the screams, falls to his knees and begins to pull the gastrostomy.

· Very low threshold of pain.

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Sister

World Krysia recently turned upside down. In the family there is a new creature by the name of Barry. Bad luck would have it, it appeared that no active cytomegalovirus, by which, together with prolonged jaundice, inflammation of the urinary tract and pneumonia in the hospital she was confined to a half month. During this period, even with her suspected epilepsy ...

CrossFit very experienced separation from her mother for so long. The year classes with sensory integration went into oblivion, and again returned huge fears. Fear of water, the sounds, even a favorite music box seemed to him ... scary. Once every five minutes as a mantra, repeated his favorite phrase, "Do not be afraid." After a long time to calm down a little and believe that there must always cling to his feet we do not go away suddenly not know where. But we are far from worked out the effects of pre-birth sisters.

everyday life very difficult for us cry. Creates a closed circle which is difficult to break. When Barry starts to cry, Christopher Robin gets a fit of rage mixed with a terrible fear. Be sure to want an immediate consolation, take his hand. The whole shaking, tears streams flowing to him. And you know, if I take it, it will not stop crying a little, and then hugging me for nothing will not. So I have to take the hands of Kate ... A few days helped Krzysiu sense of responsibility that can do something with weeping sisters. Brought dummy, he wanted to swing. In these moments of hysteria did not get the voice of her lamentation. But the winning streak is over, patience is exhausted, and again we are struggling with double tears.

This situation is yet another scenario. Well, Christopher Robin loves to do noise. Among other things, squeals, yells, howls. Simply Barry sometimes afraid of the sounds and starts crying ... and then repeated the scenario described above ...

sometimes too hard to master our talon, but still it is sometimes nice. When Barry smiles to his brother or sister of Christopher Robin is trying to have fun toys, especially their cars :-)

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time changes.

decided to change the profile of the blog. The assumption would be that only the information note by Christopher Robin, who is here since August last year.

However, in everyday life touches me often, our otherness. I am not always understood, and Christopher Robin well received.

I need, like every man, wygadania up. But being different makes you talk about something for us, obviously, and the listener, even very close to the person may feel that it speaks to her in a foreign language.

This makes in good faith, our problem is the shallows, or, conversely, being made at the end of the world ... and yet it is our everyday life, our normal lives and although it is not as simple as the others - it just is.

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Long Weekend

long weekend has passed do not even know when. Together with Demi and the gap we had the pleasure to participate in the congress aliusowych children. (Many thanks for Mirek Borowiec). Congress was held in the picturesque village far away from civilization and in conditions ideal for dogs straight-just around the meadows, water and forests.

spent there three days passed very intensively. We had the opportunity to participate in group activities on the playground with my dog, frisbee got to know basis, with an experienced instructor learned how to throw ... and it's not that simple ... who has seen me knows:)

second day Zofia Mrzewińska held for us a lecture on retrieving, and already the third day at dawn, under her watchful eye, we learned proper grounds for laying tracks and tracking. I admit that I was very interested and plan to expand my modest knowledge in this field. That same afternoon, held classes continued with Mr. Sophie. and at the end aportowaniu competitions. Oh, the adrenaline level rose:)

came back tired but very happy. My dogs odsypiają now on the couch. This morning I had to ask them to be willing to go for a walk-which never happens.

Mirc Thank you very much for the organization and the opportunity to participate, and you girls for companionship and fun.

Wkróce add a few photos in the gallery, I just have a nice smile to someone.

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powielkanocnie

Soon complements note about Christopher Robin, he's been a long time has passed since odtatniej update. Meanwhile, greetings
easterly.